Category : FAMILY
Author : Razina P A
I went home and asked Ibrahim which one was him. He said the black child is Ibrahim. My heart just sank! He hates himself! Black is his least favourite colour. He uses black/brown shades only when he is upset. After so many awareness initiatives from family, school, and society, if the child is not accepting himself from the inside, where do we stand now? All the burden of merging into the so-called normal world just falls on their little shoulders with so much masking and self-hate, to learn the hard truth that they are a misfit everywhere. .

The words inclusion and neurodiversity acceptance have been much talked about lately with more parents, organizations and neurodivergent adults expressing their views and struggles in their journey. On one side the government is saying that we should work towards building an inclusive society, on another side addressing them as “Divyangjan” and declaring projects for autism villages and other gated community facilities. The sole responsibility for the upliftment of these communities again falls into the hands of a small number of people. There is unimaginable diversity and beauty in the creation of the Almighty. So are our specially abled children. But they are not a masterpiece to be kept in a museum. People are constantly appreciating our children, crediting the parents for the struggles , and sharing some social media posts. Then they continue with their own life. And they think they are doing enough to build an inclusive society. Is inclusion a hypothesis or a reality?

Simple things go a long way in building strong, inclusive practices.
You don’t need to study any course to start practising inclusion and acceptance. Inclusion can begin with a simple smile from a toddler who thinks neurodiverse children are not weird and accept them as equal. It begins with a family who is not ashamed of our children’s mannerisms (which is their way of expressing emotions) and is supremely proud of them to take them out to all social places without the fear of staring eyes. Inclusion will become a fruitful reality when people around take the initiative to communicate and be supportive friends rather than differently abled children making multiple attempts to communicate. It is a myth that autistic children don’t socialize. It is just that their efforts are always misinterpreted as weird behaviours. Inclusion is about advocating for the child’s condition, challenges, and strengths without any discomfort to the family, neighbourhood, and friend’s circle. It should never be from a self-victimizing angle which shifts the whole focus from the child to the parent’s struggles. This is one of the reasons why many parts of society still see our children as a punishment given to parents. I am not sugarcoating things or brushing off their struggles. We can share our struggles with other parents of differently abled children so that they feel that they are not alone in this battle and support them. A mother’s life experience is the biggest knowledge treasure which needs to be shared with the right audience. If it is heard by people holding false beliefs, they will use our examples to prove their points like punishment for committing grave sins etc. I believe that the focus should be on the child when we talk about inclusion. When we get comfortable with our child, people around will automatically follow and gradually have a smile on their faces. I repeat “Never be ashamed of them in public and guilt trip them”.

Start with young minds to make the world a better place.

All awareness classes regarding inclusive practices are going on one side with a restricted audience. But not reaching neurotypical children and youngsters. They already have a preset mind that these classes are for the differently abled community and not them. What can be done to change the younger generation who are obsessed with trolls and reels? It sends a chill down my spine thinking I am bringing up Ibrahim to a world where all weirdness and differences are being ridiculed and shared on social media. Abusers are being celebrated for their cruelty, curses are considered cool, and selfies are taken even with dead bodies. There is very little involvement from youngsters who just sympathize with the differently abled, but never consider them equal or even fit for a friendship. Ideally, we should start early to instill these values through play, practice, and a lot of modelling. School curriculum should also be modified along with proper parental awareness to develop a compassionate, anti-bullying and empathetic mindset in children even from kindergarten age. These values will set new hope for future generations.

Inclusion – From Ibrahim’s perspective I always used to think that I was doing enough to mainstream my son into an inclusive society. I gave him therapies, sent him to an inclusive school, took him to places to socialize and gave him guidance on how to behave in public. Have you ever thought of it from a child’s point of view? The birth of Ibrahim brought a whole new wave of wisdom and refinement in me, and I call him “My Best Teacher”. Every day I learn something new which changes my perspective on life. One day, he painted a picture which was not his usual abstract pattern. When I asked him, he said that happy children are dancing. I was very happy that he tried something new and sent the pictures to his teachers and a few friends. Days passed; a fellow parent noted a unique thing in the picture. He said one colour is not repeated and that was black. I think your son is trying to communicate something through this. I got a clue. But wanted to confirm. I went home and asked Ibrahim which one was him. He said the black child is Ibrahim. My heart just sank! He hates himself! Black is his least favourite colour. He uses black/brown shades only when he is upset. After so many awareness initiatives from family, school, and society, if the child is not accepting himself from the inside, where do we stand now? All the burden of merging into the so-called normal world just falls on their little shoulders with so much masking and self-hate, to learn the hard truth that they are a misfit everywhere. Guilt and low self-esteem scar them for life and most of these children grow up into adults having post-traumatic stress disorder. Autistic children are seraphic souls which need nurturing and non-judgemental and unconditional support from family and friends. And all we are gifting them unintentionally are just do/don’ts, invisible wounds, and stress disorders. It is high time we started thinking from their angle so that they feel equal and accepted in the true sense. It is the people around them who should work towards adding beautiful colours to their life. Ibrahim has his own set of challenges associated with Autism Spectrum Disorder like routine obsessions, sleep anxiety, sensory issues and communication difficulties. But every day he tries to become a better person and wants people around to accept him as he is. Sometimes Superheroes live in the hearts of little children fighting big battles inside. From a 2.5year old child with sensory challenges, who was not able to respond to his name to a person who loves social gatherings, Ibrahim has come a long way. Now it is the time for society to learn how to interact with them and respect them, rather than the children still being given social skill training. We want inclusion to become a fruitful reality one day not a hypothetical one!!
A Permanent Art Space for the Neuro Diverse “BAE – Gifts by the Gifted” came up with the concept of giving an inclusive platform for the artworks done by the neuro-diverse and turning them into excellent gifting solutions. Generally, we have neuro-diverse artworks featured in a few exhibitions and they feel sad when their works are not sold. Hence, we thought of giving a permanent art space for them where they can display their talent and also earn a little. We sell original artworks done by our autistic marvels. The neurodiverse community doesn’t want people to buy artefacts made by them out of sympathy or charity. True inclusion begins when these art explorations are appreciated, and people consider them worthy enough to give them a place in the heart of their loved ones or their homes. The feeling of being acknowledged for their craft; being understood and respected for their inner struggles is the most precious gift you can give these warriors. We aim to change the perspective of people and bring more awareness and acceptance through the medium of art. Come join us in this journey to celebrate the ability to think differently. Make this world practically a better place for the “People of Determination”. We want our kids to be treated as equals and not divine beings!

2 Comments

  1. Zarina

    Ibrahim… You are better than many non autistic children. Lot of paintings and many skills acquired. Love you

    Reply
    • Asma Imtiyaz

      True

      Reply

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